Personal data

National Data opt out statement

How we use your information

East Lancashire Hospice is one of many organisations working in the health and care system to improve care for patients and the public.

East Lancashire Hospice is currently compliant with the national data opt-out policy. We review this information on an annual basis and on an individual basis when implementing or making changes to data processing. If, in the future we do identify any uses for patient information that will be under the remit of the National Data opt-out criteria, we will follow the required procedure to ensure we remain compliant. We will inform our patients at this time and ensure you wishes at the time are followed.

Further information about your data

Whenever you use a health or care service, such as attending Accident & Emergency or using Community Care services, important information about you is collected in a patient record for that service. Collecting this information helps to ensure you get the best possible care and treatment.

The information collected about you when you use these services can also be used and provided to other organisations for purposes beyond your individual care, for instance to help with:

improving the quality and standards of care provided
research into the development of new treatments
preventing illness and disease
monitoring safety
planning services

This may only take place when there is a clear legal basis to use this information. All these uses help to provide better health and care for you, your family and future generations. Confidential patient information about your health and care is only used like this where allowed by law.

Most of the time, anonymised data is used for research and planning so that you cannot be identified in which case your confidential patient information isn’t needed.

You have a choice about whether you want your confidential patient information to be used in this way. If you are happy with this use of information you do not need to do anything. If you do choose to opt out your confidential patient information will still be used to support your individual care.

To find out more or to register your choice to opt out, please visit www.nhs.uk/your-nhs-data-matters. On this web page you will:

See what is meant by confidential patient informationFind examples of when confidential patient information is used for individual care and examples of when it is used for purposes beyond individual careFind out more about the benefits of sharing dataUnderstand more about who uses the dataFind out how your data is protectedBe able to access the system to view, set or change your opt-out settingFind the contact telephone number if you want to know any more or to set/change your opt-out by phone See the situations where the opt-out will not applyhttps://www.hra.nhs.uk/information-about-patients/ (which covers health and care research); and

https://understandingpatientdata.org.uk/what-you-need-know (which covers how and why patient information is used, the safeguards and how decisions are made)

You can change your mind about your choice at any time.

Data being used or shared for purposes beyond individual care does not include your data being shared with insurance companies or used for marketing purposes and data would only be used in this way with your specific agreement.

Health and care organisations have until 31st July 2022 to put systems and processes in place so they can be compliant with the national data opt-out and apply your choice to any confidential patient information they use or share for purposes beyond your individual care.

If you have any questions about this or would like any further information, please contact: danielle.ruane@eastlancshospice.org.uk

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